I am Pretending I am Allright...

Woody girl

Full Member
Mar 31, 2018
4,830
3,779
66
Exmoor
Hence my advice to ask your dr if it rises to the level of qualifying for a disability pension (or the UK equivalent)
It's called person independence payment. Very hard to qualify for nowadays. Lots of people have been downgraded to the lower rate or had it taken away altogether. It takes months to get and you can be owed thousands by the time you do get it. Nothing is set in stone. You can have it taken away for no real reason at any time. This has just happened to a friend of mine just before Christmas. Couldn't even pay his rent as everything was stopped. He's still appealing but it could take months.
There seems to be no remember or reason behind decisions now. There was an awful story of a man dying of cancer being only granted it on the day he died! The whole system is a mess now.
Tengu, my neighbours son is autistic. He's got a job. I've known him since he was a baby. He's now very happy with a girlfriend and money in his pocket. He will never live independently but I've seen him come on in leaps and bounds the past couple of years. It is possible if you believe it is. If you go for a job with the attitude that they won't want me because I'm different. .. it will come true.
What you have to concentrate on is what you can do, and what you can offer an employer. Not what you can't.
It's illegal to discriminate for reasons of disability of any sort. So realy there is no reason to not work if you want to.
I know you prefer to be a student and the thought of working may be a real panic inducing idea . But you want a job as an archivist don't you.. you are happy doing that. So find a job doing that. Maybe in a museum or town historic society. We have a centre here in my tiny out of the way town, so the opportunity is there if you want it.
 

C_Claycomb

Moderator staff
Mod
Oct 6, 2003
7,657
2,727
Bedfordshire
Tengu,
I am curious, do you have trouble in choosing jobs to apply for, or finding jobs that you would be interested in doing, or within commuting distance of home? I know that "analysis paralysis" can be a problem, and that trying to stick at a job that isn't interesting can be harder than for some other people.
 
  • Like
Reactions: santaman2000

Janne

Sent off - Not allowed to play
Feb 10, 2016
12,330
2,297
Grand Cayman, Norway, Sweden
I presume this is meant at me?

If it is I REALY wish you would put in your experience in your reply mine is very different...
Well, one symptom of Autism is a difficulty of interaction and communication.

A medical doctor treating patients needs high level of both.
In my experience. Really!
Of course a medical doctor in research or the pharma industry does not need these so much.


Where did you get the info? I am curious!

Also, many people with Autism have a problem coping with stress.
 

Corso

Full Member
Aug 13, 2007
5,260
464
none
Well, one symptom of Autism is a difficulty of interaction and communication.

A medical doctor treating patients needs high level of both.
In my experience. Really!
Of course a medical doctor in research or the pharma industry does not need these so much.


Where did you get the info? I am curious!

Yes you can only offer a perspecitive in your experience

Don't assume what you know is what everyone has experienced it devalues your contribution

I've work in and contributed to the medical field for 25+ years = had a few sucesses too

Do you think only Doctors work in or contribute to medicine? Do you think only Doctors treat patients? Do you think they work in isolation? Or maybe they work as part of a team? And even rely on other experts that have skills they don't.
 
  • Like
Reactions: Robbi and Kepis

Janne

Sent off - Not allowed to play
Feb 10, 2016
12,330
2,297
Grand Cayman, Norway, Sweden
Yes, it is very complex. Very wide spectrum in the ’all enclosing’ diagnosis Autism.

No, not Wiki. I do not read the best disinformation site ever constructed.
Uni. Bum on desk, listening, taking down notes. Reading text books in faculty library and at home. The old fashioned way.

I assumed you meant a med dr.
 

Corso

Full Member
Aug 13, 2007
5,260
464
none
I assumed you meant a med dr.

How? I said

Some of the finest minds I've worked with and learned from have been on the autism spectrum

Science/Medicine is a common field where the attributes can be a big plus

Where did i ever mention Doctor

besides in 25 years I have met plenty that could be considered somewhere on the spectrum - and it's always been a positive attribute
 

Corso

Full Member
Aug 13, 2007
5,260
464
none
Yes, it is very complex. Very wide spectrum in the ’all enclosing’ diagnosis Autism.

No, not Wiki. I do not read the best disinformation site ever constructed.
Uni. Bum on desk, listening, taking down notes. Reading text books in faculty library and at home. The old fashioned way.

I assumed you meant a med dr.


try pubmed/researchgate

better than dusty old tombs that are probably out of date before the ink is dry ;)
 
  • Like
Reactions: Robbi

Woody girl

Full Member
Mar 31, 2018
4,830
3,779
66
Exmoor
I don't think these last few posts are helping Tengu in any way.
Please if you wish to have a nip at each other do it by pm not here.

I'm cringing thinking how I would feel if I was tengu reading this.

With respect

Sorry but I don't think this is the time or place for this argument.

Let's stick to the subject and just offer words of care and support or ideas that it might be possible for Tengu to work with.
 

Janne

Sent off - Not allowed to play
Feb 10, 2016
12,330
2,297
Grand Cayman, Norway, Sweden
I agree. Let’s bury the old rusty battle ax!
It leads only to grief.
I may have said it earlier, but not finishing a post grad degree is not the whole world. Yes it feels, but you as a person has only gained.
I would not go and try and have it reassessed, it will only cost money and stress you out.

The only time I would do that is if my future career depended on that degree. I have a feeling it will not, can I assume that?

Many employers back away from a person that falls outside the narrow ‘normal’ bracket, but many are fully ok and understanding.
Persevere, accept a lower position that you really are capable of, and show them your skills.
But, as I mentioned earlier, you must be prepared to relocate.

Btw, congratulations on your weight loss, I wish I had the strength to do the same!
 

Tengu

Full Member
Jan 10, 2006
13,031
1,642
51
Wiltshire
So, I have to spend the next thirty years in finding a job?

Thats very depressing.

The unemployment rate for people with AS is about 80%

the idea of me finding a job is a joke.
 

Van-Wild

Full Member
Feb 17, 2018
1,526
1,360
45
UK
So, I have to spend the next thirty years in finding a job?

Thats very depressing.

The unemployment rate for people with AS is about 80%

the idea of me finding a job is a joke.
No tengu.... you have to spend the next few seconds actually realising that you're better than this. You're more than the sum of parts. You're destined for a greater you!

Let me tell you a little story. It's true because it's about me. I'll keep it as short as I can though, because I know that people get lost in the rant......

I grew up in a violent household. I got my bottom beat regularly by my father. So much so that one day, I was taken into social care. But it didn't get better for me. I fell right in with the delinquent crowd. I skipped school. I got myself arrested many times. I got expelled from school. The local cops knew me by sight. I became violent by nature and nuture.....

I finished my school age years with 5 GCSEs, all below a C except one, a B in English Literature. I had no direction in my life. My dad and mum were divorced, dad vanished into thin air and mum remarried and ignored me. I was alone. At 16 years old, I had nothing. No home, no education, no income.

My first thought was I needed a bed. So I asked a friend if I could sleep on his floor. I slept there every night for six months or so. Eating his food, drinking his water, no responsibilities. Easy life. But then I got depressed. Sure I didn't have to pay for nothing, I was living off my friends good will, but inside it hurt me.

I got a job. I collected glasses in a pub three nights a week, £15 a night. I had some money. I socialised. I started paying my friend rent. I paid for one meal a week. I realised that I could do SOMETHING. I felt better.

I went to the Job Centre. No qualifications, no experience. Noone would employ me. I asked around and I took a job as a labourer on a building site, cash in hand. I earned £100 a week. So I paid my friend more rent and contributed to food. I even had a little spare to pay for a few pints. So I felt better. But I was still living on my friends floor...

So I went back to the job centre. No qualifications. A bit of experience in hard graft and a friendly, chatty personality. After so many job applications I applied for a job as fruit and veg delivery boy. Got it. Start at 0530, finish at 1400. Every day... loading fruit and veg onto a truck then delivering it it local shops. Hard work. £220 a week and a whole tray of fruit and veg every Friday! How good was that eh?!

I rented my own place. A tiny bedsit. One room and a kitchenette. But it was only two streets back from the beach. I was winning!

All that took me from 16 years old to 19 years old. Holy **** I struggled. I begged at times, I cried, I hated myself. I took the notion of friendship to the limits. But I just knew that if I kept going, if I kept digging deeper and working harder, I would get there. And I did. By my mid 20s it was all good. I was married, still renting but it was all good. We weren't rich but I thought we were happy....

Nah, wife wasn't happy. We got divorced. I lost it all at 26. Homeless. Back to square one and living on a friends floor. So I did what I had always done. I dug deep. I worked hard. Still had a job so that was cool. Got myself another place to live. Got balanced. Found myself another girlfriend. All was good in the world. By now I was in my 30s.

Man I was soo happy. All working out. Nice enough house, happy in my job. We were talking about having kids. Then one day I was in a truck driving to work and it went off a bridge. Fully submerged upside down in a river. My friend opposite me drowned and died right before my eyes. Nothing i could do. But I lived. Why? I don't know why but I did. I've lived with that moment ever since. I held my breath and struggled to get him out but I couldn't. Eventually I had to let go.... it haunts me to this day.

It affected me deeply. I struggled with myself for a long time. Eventually I sought help. After a time I came to realise that life is all chance and the only thing that affects chance is choice. To make my life better I had to make choices. Hard ones at times, choices that made me question myself, question everything around me, turn my back on people who I thought I could trust and at times, ask my enemies for help. But one thing I am not is too proud to ask. I am not too stubborn to seek help and and I am not afraid to be bold. F*** chance. Be decisive. Make your own choices and be bold. You're not alone and more importantly, you're not the only one who has or is having it hard.

I haven't typed all this out just to be self-appreciating and I'm certainly not looking for anyone to give me words of soothing encouragement, so if you're thinking about it, don't bother. Thanks but im good.

Tengu, I write this because I want to show you that it ain't all that bad dude. You have an able body and an able mind. You have a myriad of choices. A myriad of decisions to make. You're not disabled. You don't have a terminal illness, you don't have a life changing injury. You are only limiting yourself by your own own choice.

To better yourself you have to be a better you.

(And by the way, I am now happily married with two great kids, three dogs, a van and I'm happy. Still working hard....)

GET AFTER IT TENGU

Sent from my SM-G903F using Tapatalk
 
Last edited:

Woody girl

Full Member
Mar 31, 2018
4,830
3,779
66
Exmoor
So, I have to spend the next thirty years in finding a job?

Thats very depressing.

The unemployment rate for people with AS is about 80%

the idea of me finding a job is a joke.

No its not tengu. Remember you need to focus on what you are able to do... not on what you can't.
I told you about the lad in my road. He's much further along the autistic spectrum than you. He's working. OK it's not a brilliant job earning fantastic amounts but he's OK and doing well. He pays his mum some rent and has enough left over to treat his girlfriend now and then.
When he was a baby if I called round unannounced he would go into meltdown if he had not been prepared... and I do mean meltdown. You are nothing like that. You are intelligent and have the ability to work hard at a subject that you enjoy... so why would you not get a job? You must stop thinking negatively about things and remember for every door that closes another opens. Even if you can't see it it's there.
All you have to do is take any opportunity that comes your way and say yes to everything. Eventualy you will find your way as van wild has.
Sometimes the world you have been comfortable in changes.. it happens to everyone. I lost a partner and my son in a two year period. Life was dark for a while but I began to say yes to whatever came my way even if it didn't seem relavant to my life. I now have learned drum healing , been to sweden snowmobiled up a mountain to watch a sunset in sweden. Been dogsledding. Started to go to the moot and met some lovely people along the way. (I've met a few stinkers too but I don't dwell on that)
I wasn't looking forward to another lonely Xmas this year but funnily enough I told myself that it would be fine and it was. I've had people here at my house and spent Xmas at a friend's home.
It was a fabulous Xmas compared to the last few. Obviously not the same but sometimes you need to move on or you become stagnant and you feel you can't.
Now obviously I don't have the same problems as you, and it's in your mind, easier for me or van wild. But I think you will be surprised to learn it's not as easy as you might imagine.
Believe in yourself and others will too. Be negative and you will not be going anywhere.
Know that your family love you and you have friends. More than many have in this world. So give thanks for the positive in your life and know you can get round this and move onwards if you realy want to.
Curling up into a ball and bemoaning your lot isn't going to get you anywhere . You have a great mind so put it to positive use for some good.
It's a hard fact of life that you can't be a student for ever. If you do get your post grad what are you planning to do next? Do you absolutely need a post grad to do that? Or can you do it without? I bet you can!
Be positive and you will be surprised at what doors open for you.
 
  • Like
Reactions: Van-Wild

Woody girl

Full Member
Mar 31, 2018
4,830
3,779
66
Exmoor
Ok I'm going to amend my last post a bit. A very quick Google search has shown me that to be an archivist earning £35,000 a year you need a post grad in archiving but I'm sure you could find an opening somewhere even if it's not your preferred option to start with. You could then work towards a post grad part time at a pace that suits you better. Meanwhile you are getting experience and something positive to put on your cv. Give it a try and don't be put off with a few rejections. Everyone gets them nowadays. That's normal. And they don't even have autism!
I'm sure everyone here could give you a story about how things didn't work out quite as expected in their lives. Sometimes it's for the better although at the time it seems like the end of the world.
Head up and take a step forward then another. Soon you will find yourself in a different and sometimes better place than you ever envisaged. It may take a few years... but then so did getting to where you are now.
 

sunndog

Full Member
May 23, 2014
3,561
480
derbyshire
If I ride past the next village over at 7.00am on a weekday I'll see a down syndrome kid in his at a guess waiting at the bus stop to take him three villages over to his job in a hotel.
He lives in a one road village and found a job in Bakewell which is perhaps too big to call a village but nobody would really class it as a town....yet he managed to find work.

You definitely can do a job.
The things you must do to get as far as you have in education are probably beyond my skillset. I'm a broadback with a penchant for ropes and woodcutting I couldn't do what you do. My GF is studying for a masters in philosophy I know the sorts of things that are expected in higher education and it would kill me.

Besides if you decide employment is impossible for you what do you do? Become a ward of the state? That's got to be even more depressing than the sh!t job that is the reality for an awful lot of the working class
 
  • Like
Reactions: Robbi

oldtimer

Full Member
Sep 27, 2005
3,322
1,996
83
Oxfordshire and Pyrenees-Orientales, France
It's called tough love. I've been following your thread but refrained from posting as others have made plenty of wise comments. But we all listen and that is what you need. The solutions to your problems you can work out for yourself. I suspect there are people here who have more respect for you than you appear to have for yourself. Life is a struggle: keep fighting!
 
Last edited:

Woody girl

Full Member
Mar 31, 2018
4,830
3,779
66
Exmoor
Thank you for being supportive; sometimes that means a kick up the bum.
Hey Tengu.. we all care about you!
Have I ever told you about the jobs i had shovelling dog poo cat poo horse poo or cow poo? Not quite what I envisioned for myself but it put a roof over my head and food on the table. Sometimes you just have to roll up your sleeves and do something however distasteful for a while untill the planets align and something better comes along. It always will sometime down the line.
Trust that whatever your circumstances are now are for a reason and the skills you have now may be all you need for the next step in life.
For instance.. working with cows I hated the smell and was not into the early mornings and mud and great scary hulking beasts. I learned not to be scared and how to handle a herd safely and drive a tractor... skills which came in handy when I had to help rescue a woman and her dog being chased by a herd and possibly hurt or killed and when I took my forestry city and guilds I had a heads up on the tractor driving bit which proved useful being the only girl on the course and able to outshine on that part.
I would never have dreamed at the time I'd need those skills elsewhere on life's journey so don't limit yourself. Expand to your full worth and potential. So many don't and wonder why they are stuck in a job they hate or with people who are not good for them.

Ps you may wonder why I took a job with cows when I was so scared of them and hated it so much. Well I had just lost my house is was buying as my boyfriend walked out on me and I couldn't afford the mortgage on my own even working from 6 am till 11 pm every day of the week! So I was homeless pennyless and grieving for having lost everything I had worked so hard for. The farm job put a caravan roof over my head and three meals a day. I was able to save all my wages and six months later rent a small flat and take up my forestry course. Who'd have believed it?
 
Last edited:

BCUK Shop

We have a a number of knives, T-Shirts and other items for sale.

SHOP HERE